A familiar diagnosis
I sat in a conference hall in Rio Branco, Acre State, Brazil.
My mind was in a sanatorium of Algeria.
This was where my mother was sent as a girl.
They told her she got tuberculosis because she was an “indigène musulman”.
In 1938, the year of my mother’s birth and after over a century of colonization, about 5 out of every 100 Algerian people got infected with tuberculosis each year.
French colonial reports show that Algerians died from tuberculosis at much higher rates than French settlers.
They claimed the disease was endemic due to the supposed inferiority of our people.
And that she was going to die.
Colonialism is a liar.
She survived.
And it took less than eight years for an independent Algeria, free of the scourge of colonialism, to eradicate the scourge of TB.
Listening to the leaders at Brazil’s First National Seminar on Indigenous Health and Climate Change, I heard that same lie being dismantled.
The body of the territory, the body of the people
I listened.
I heard a diagnosis specific to their lands and histories, and recognized a familiar pattern.
The territory is a living body, they said.
When it is sick, we are sick.
Ceiça Pitaguary is an indigenous leader and activist from the Pitaguary people in Brazil.
The crisis, she xplained, is a daily reality of “prolonged droughts, devastating floods, intense storms, and the rise in temperatures” that represents “real losses experienced in the body and on the territory”.
This is a wound with many layers.
There are the physical symptoms an epidemiologist would recognize: respiratory illnesses from fire and waterborne diseases from floods.
But the deeper sickness that speakers diagnosed, one after another, is a systemic decay.
I listened as Wallace Apurinã stated that when the floods come, “traditional medicine, which is such an important and fundamental knowledge for our subsistence… this ends”.
It is a crisis that creates what Elisa Pankararu named a “collective sadness”.
“Our people are sad,” she said, because the world is in imbalance.
This is a spiritual wound, like the one Juliana Tupinikim described.
She said the Krenak people lost not just a river to a mining disaster, but “fundamental elements of their spirituality and cultural identity”.
The crisis, Gemina Shanenawá insisted, is not abstract.
“It has a face, a name, and a territory: the face of Indigenous women”.
She gave voice to their struggle: “‘I lost everything, I lost my house, I lost my pigs, my chickens. And now? What am I going to do?’”.
The architecture of failure
There is a pathogen worse than fossil fuel.
It is colonialism.
I recognized its stench in the testimony of the leaders.
It is a system designed to fail its most vulnerable.
Weibe Tapeba, Brazil’s Secretary of Indigenous Health, described the paralysis.
“Today, our Indigenous territories are not understood as federal units,” he said.
This means that they are unable to issue crucial decrees themselves, which severely hinders their ability to prepare for, respond to, and recover from increasingly frequent catastrophic events.
“We do not have the autonomy to issue such a decree ourselves”.
This intentional powerlessness leaves communities exposed.
It creates the chain reaction that researcher Renata Gracie detailed in the Yanomami territory, where illegal mining leads directly to “an enormous increment in the occurrence of malaria, trachoma, measles, tuberculosis, malnutrition”.
The state’s response—culturally inappropriate food baskets were one example I heard—is changing.
It was impressive to see how government, with leadership from Tapeba and others, engages in meaningful, open dialogue by and for indigenous communities.
What you call anecdote, we call ancestral science
An invisible but profound violence of colonization is the dismissal of a people’s way of knowing.
Your science is ’data’.
Ours is ’folklore’.
The entire seminar was a rebellion against this lie.
In my own talk, I spoke about how health workers’ expertise – what they know because they are there every day – is often devalued as mere “anecdote”.
Putira Sacuena provided the most powerful rebuttal.
She spoke of a small frog in the Xingu territory.
“We stopped hearing its sound in the territory”, she explained.
The frog’s silence predicted the rise in respiratory illness and diarrhea.
She said: this is ancestral science.
It is a signal from a highly sophisticated, multi-generational system of environmental monitoring.
Our existing systems do not just miss this data.
They are structurally incapable of recognizing it as data in the first place.
The challenge, then, is to begin the work of unlearning the colonial biases that prevent us from seeing the knowledge that is right in front of us.
It requires us to abandon the “high, hard ground” of our self-referential expertise.
The fight for health here is, more than we realized, a fight for cognitive justice, a demand that such knowledge be seen not as a cultural artifact, but as essential data.
As Ceiça Pitaguary declared, “The fight against the climate crisis will not be won without Indigenous peoples”.
That is not a political slogan.
It is a vital, scientific truth of our time.
It demands that we, in our institutions and our fields of practice, dismantle the systems that are causing this devastation.
References
- Bentata, K., Alihalassa, S., Gharnaout, M., Bennani, M.A., Berrabah, Y., 2025. Algerian Tuberculosis Control Program: 60 Years of Successful Experience. Cureus. https://doi.org/10.7759/cureus.86357
- Brubacher, L.J., Peach, L., Chen, T.T.-W., Longboat, S., Dodd, W., Elliott, S.J., Patterson, K., Neufeld, H., 2024. Climate change, biodiversity loss, and Indigenous Peoples’ health and wellbeing: A systematic umbrella review. PLOS Glob Public Health 4, e0002995. https://doi.org/10.1371/journal.pgph.0002995
- Ellwanger, J.H., others, 2020. Beyond diversity loss and climate change: Impacts of Amazon deforestation on infectious diseases and public health. Anais da Academia Brasileira de Ciencias. https://doi.org/10.1590/0001-3765202020191010
- Ford, J.D., 2012. Indigenous Health and Climate Change. Am J Public Health 102, 1260–1266. https://doi.org/10.2105/AJPH.2012.300752
- Grande, A.J., Dias, I.M.A.V., Jardim, P.T.C., Aparecida Vieira Machado, A., Soratto, J., Da Rosa, M.I., Ceretta, L.B., Zourntos, X., Suares, R.O., Harding, S., 2024. Environmental degradation, climate change and health from the perspective of Brazilian Indigenous stakeholders: a qualitative study. BMJ Open 14, e083624. https://doi.org/10.1136/bmjopen-2023-083624
- Jones, R., Macmillan, A., Reid, P., 2020. Climate Change Mitigation Policies and Co-Impacts on Indigenous Health: A Scoping Review. IJERPH 17, 9063. https://doi.org/10.3390/ijerph17239063
- Kramer, C.K., Leitão, C.B., Viana, L.V., 2022. The impact of urbanisation on the cardiometabolic health of Indigenous Brazilian peoples: a systematic review and meta-analysis, and data from the Brazilian Health registry. The Lancet 400, 2074–2083. https://doi.org/10.1016/S0140-6736(22)00625-0
- Lavallee, L.F., Poole, J.M., 2010. Beyond Recovery: Colonization, Health and Healing for Indigenous People in Canada. Int J Ment Health Addiction 8, 271–281. https://doi.org/10.1007/s11469-009-9239-8
- Lin, C.Y., Loyola-Sanchez, A., Boyling, E., Barnabe, C., 2020. Community engagement approaches for Indigenous health research: recommendations based on an integrative review. BMJ Open 10, e039736. https://doi.org/10.1136/bmjopen-2020-039736
- Pontes, A.L., others, 2020. Health reform and Indigenous health policy in Brazil. Health Policy and Planning. https://doi.org/10.1093/heapol/czaa116
- Rankoana, S.A., 2022. Climate change impacts on indigenous health promotion: the case study of Dikgale community in Limpopo Province, South Africa. Glob Health Promot 29, 58–64. https://doi.org/10.1177/17579759211015183
- Reading, C., Wien, F., 2009. Health inequalities and the social determinants of Aboriginal health. National Collaborating Centre for Aboriginal Health.
- Redvers, N., Celidwen, Y., Schultz, C., Horn, O., Githaiga, C., Vera, M., Perdrisat, M., Mad Plume, L., Kobei, D., Kain, M.C., Poelina, A., Rojas, J.N., Blondin, B., 2022. The determinants of planetary health: an Indigenous consensus perspective. The Lancet Planetary Health 6, e156–e163. https://doi.org/10.1016/S2542-5196(21)00354-5
- Rieger, K.L., Horton, M., Copenace, S., Bennett, M., Buss, M., Chudyk, A.M., Cook, L., Hornan, B., Horrill, T., Linton, J., McPherson, K., Rattray, J.M., Murray, K., Phillips-Beck, W., Sinclair, R., Slavutskiy, O., Stewart, R., Schultz, A.S., 2023. Elevating the Uses of Storytelling Methods Within Indigenous Health Research: A Critical, Participatory Scoping Review. International Journal of Qualitative Methods 22, 16094069231174764. https://doi.org/10.1177/16094069231174764
- Roher, S.I.G., Yu, Z., Martin, D.H., Benoit, A.C., 2021. How is Etuaptmumk/Two-Eyed Seeing characterized in Indigenous health research? A scoping review. PLoS ONE 16, e0254612. https://doi.org/10.1371/journal.pone.0254612
- Sahu, M., others, 2022. Measuring Impact of Climate Change on Indigenous Populations’ Health: A Global Review. International Journal of Environmental Research and Public Health. https://doi.org/10.3390/ijerph192315592
- Sanson‐Fisher, R.W., Campbell, E.M., Perkins, J.J., Blunden, S.V., Davis, B.B., 2006. Indigenous health research: a critical review of outputs over time. Medical Journal of Australia 184, 502–505. https://doi.org/10.5694/j.1326-5377.2006.tb00343.x
- Santos, H.C.D., Mill, J.G., 2024. Multimorbidity and associated factors in the adult Indigenous population living in villages in the municipality of Aracruz, Espírito Santo, State, Brazil. Cad. Saúde Pública 40, e00135323. https://doi.org/10.1590/0102-311xen135323
- Silva-Junior, C.H.L., others, 2023. Brazilian Amazon indigenous territories under climate and deforestation pressure: an analysis of 2013-2021 period. Scientific Reports. https://doi.org/10.1038/s41598-023-31570-y
- Smallwood, R., Woods, C., Power, T., Usher, K., 2021. Understanding the Impact of Historical Trauma Due to Colonization on the Health and Well-Being of Indigenous Young Peoples: A Systematic Scoping Review. J Transcult Nurs 32, 59–68. https://doi.org/10.1177/1043659620935955
- Soares, G.H., Jamieson, L., Biazevic, M.G.H., Michel-Crosato, E., 2022. Disparities in Excess Mortality Between Indigenous and Non-Indigenous Brazilians in 2020: Measuring the Effects of the COVID-19 Pandemic. J. Racial and Ethnic Health Disparities 9, 2227–2236. https://doi.org/10.1007/s40615-021-01162-w
- Thebaud, A., Lert, F., 1985. Maladie subie, maladie dominee, industrialisation et technologie medicale: Le cas de la tuberculose. Social Science & Medicine 21, 129–137. https://doi.org/10.1016/0277-9536(85)90081-4
- Thomas, A., 2024. Colonization as a Determinant of Health. Western University Global Health Equity.
- US Environmental Protection Agency, 2025. Climate Change and the Health of Indigenous Populations. EPA.
- World Health Organization, 2025. Global Plan of Action for Health of Indigenous Peoples. WHO.
Image: The Geneva Learning Foundation Collection © 2025